{Originally published on Just Another Mama Blog}

We had a couple of rough nights around here. Two nights ago, Luke was tossing and turning and moaning with a high fever for much of the night. He came up to our bed and I didn’t sleep much. And last night, Henry came upstairs crying around midnight because of a leg ache. I ignored him for a while due to my exhaustion from the night before, but finally, I had to attend to his pain.

Two nights ago, when I was awake with Luke, my nighttime despair began to creep up on me. For a period of time when I was a child, I used to hate nighttime. I had an overactive sense of guilt and at night, I worried a lot. I dreaded nights. And more than anything, I hated spending nights away from my parents. I usually avoided these situations, but if that was impossible, I often spent the night nauseated and restless. While I eventually grew to love sleepovers by my teenage years, I still often struggled with waking in the night in a panic. Now, sleepless nights sometimes bring on a bit of this fear.

As I was feeling a little panic two nights ago with Luke, an airplane flew overhead, and at that moment, my worries abated. My maternal grandparents lived near an airport, and when I spent the night with them, the sound of the airplanes flying over me all night long helped to soothe my worries. Something about being tucked away in their little guest room under the rhythm of the jets overhead made me feel that the world was an orderly place.

And last night, as I fixed a heat pack for Henry’s leg, I was transported back to the days when my own mom fixed a hot water bottle for my own growing pains. In my memory, I am lying on the couch in the dim midnight light, knowing that relief will come, listening to the sound of the water running and running as it gets hot enough to fill the bottle. My mother’s calm, measured actions, performed so many times, took on that same soothing nighttime quality as the jets.

Part of growing up for me was learning to fear the night less, learning to let go of my strange and overactive senses of worry and guilt. It has taken me a long time to learn to be peaceful in the night. I have suffered many growing pains over the years, in my legs and in my heart, and always at night.

{Originally published on theRunaMuck.)

I seriously feel like I just had my lights knocked out, and I’ve woken seeing red and dusting off my rear end.

It’s sangria time, people. Are you raising your cups?

My husband and I can’t stop saying: we only have this one life.

I’ll say it again - we only have this ONE and it’s riding like a breath on the wind, already in disintegration. So what are we doing here?

If God doesn’t shine through this spot of air He’s given me, may my computer fly to the moon, let the world wide web scramble to a fuzz, and may we meet outside weeping at each other’s necks for what we’ve been missing.

Luke 12:48 (The Message)

47-48“The servant who knows what his master wants and ignores it, or insolently does whatever he pleases, will be thoroughly thrashed. But if he does a poor job through ignorance, he’ll get off with a slap on the hand. Great gifts mean great responsibilities; greater gifts, greater responsibilities!

I have been given much. That is my confession today.

{Originally posted on Momo Fali}

The way I look at the world has changed. It’s not because I’m getting older and it’s, for sure, not because I’m getting any wiser. It’s because I am the parent of a child who doesn’t fit the mold.

My son is not typical. He is not autistic, he doesn’t have Downs, there is no disease, disorder, or diagnosis of any kind. On one hand, that’s something for which I am happy. On the other hand, it can sometimes be frustrating.

The geneticists were sure there would be some way to classify him, but after extensive testing they came up with nothing. He is an enigma.

His expressive speech is that of a three year old, yet his teacher says he’s gifted. He is still in need of therapy, but our county agency doesn’t want to pay for it anymore because his I.Q. is too high.

He has a hearing loss, but it’s not something a hearing aid can help. He loves music, but can not sing you a song. He can read a book, but can’t tell you what it was about after he closes the cover. Yet, he can take a computer test on that book the next day and get every question right. So far this school year, he has taken 103 such tests.

His defective heart is stable enough that he can ride roller coasters and play sports, but an anesthesiologist at an outpatient surgery center won’t touch him because he’s a “heart kid”. Something as simple as ear tubes requires a trip to the hospital. A tonsillectomy meant an overnight stay in the ICU.

He’ll be seven in May, and as of Sunday he weighed 37 pounds. He can ride a bike, but can barely reach the pedals.

{Originally posted on Schmutzie.com}

Over one year later, I am still discovering the shape of my grief over the loss of my uterus.

I miss a thing I could never see. I have no documentation of its existence. It does not show up in family photo albums. My clothing fits as it did before the surgery. I never touched it with my hands. I cannot trace its outlines in pictures or where it is no longer on my body.

The only evidence that it was ever here is a pregnancy test that I keep pushing to the back of the bathroom cupboard behind the cleaning supplies.

I do not like that it was cut up into tiny pieces and vacuumed out of me. I do not like that it became medical waste. No part of any body should be made into medical waste. Our bodies hold far too much power, far too much meaning, to be so degraded.

I am angry that I could not take it with me, that I could not find my own place to put to it to rest. I hate not knowing where its pieces are. I imagine it having its own sapling beneath which it could rest and feed its growth. I need to imagine it being less alone.

The shape of this grief is little more than a chronological line between two points, from there to here. It has yet find its flesh.

{Originally published on PENSIEVE}

I did something yesterday I hadn’t done in a long, long time.

It was quite by accident, I wouldn’t have planned it, and in fact, had I known what I was getting into, I would’ve done whatever I could to avoid it.

Under cotton ball-dotted blue skies during the afternoon rush, I walked into the grocery store. A full shopping cart and an empty pocketbook later, I walked out into unexpected gray and gloom; not just rain mind you, but furious pregnant drops defying gravity with a sideways pour.

The parking lot had been crowded when I arrived, forcing me to park at the far end. “It’s better for me, anyway” I remember thinking.

There were no two ways about it, I was going to get wet.

Person after person in the same boat as I made a run for it; it’s funny to watch someone make an umbrella out of a bag of dogfood. It’s also entertaining to watch people dancing and dodging to avoid the inevitable–this was a deluge, THEY WERE GOING TO GET WET!

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